The Mountain

Aidan’s [3] Ski Lesson

This morning before we left for the mountain – I checked my email to find this was the verse of the day: “I waited patiently for the LORD to help me, and he turned to me and heard my cry.” Psalm 40:1 I’m not sure about the patiently part – but the rest is certainly true.

My mom came with us to Aidan’s ski lesson for the first time this morning. Aidan is in the advanced class. Today we actually got to watch his skillz as he skied down the run by the base lodge. Him and two other kids from his class managed the chair lift BY THEMSELVES. We got to watch a handful of runs and then it was lunch time. My mom and I snagged Fin and took her home with us for the afternoon while Caren & Aidan stuck around the mountain. During one of Aidan’s last runs with his class, my mom and I were standing outside watching him (mess around) wait in line and then get on the chairlift. He was in the middle of two bigger kids. They all got on the lift, but Aidan wasn’t quite all the way on – and there were no attendants watching. My mom and I gasped (and people stared) and his classmates grabbed him and pulled him on the rest of the way. Um, heart stopper. It wasn’t a huge deal, but it was not fun to watch from a distance.

It was a fun morning on the mountain. It was super foggy and snowing beautifully when we pulled into the parking lot and it was fun to run into a few friends today.

{It was snowing big beautiful snowflakes and Finley’s eyelashes kept catching them. She wanted a picture…I don’t see the snowflake, but she sure is cute. }

I was thinking about this song [and the past few months] this morning . . .

Acceptance Speech

What a party, people! It’s difficult not to bust out in tears every time I say, “they said YES!” What joy is in those words.

I really did not expect to hear the news before the weekend. Such a nice way to end the week and start the weekend.
I know some of the people involved in the decision/paperwork process have been reading my blog – and I just want to give them a little shout out. Thanks for all your hard work and for making sure I was in the loop. Things really came together this week and I know I had a few people at the U of M rooting for me. I’m looking forward to meeting you soon.
I know I’ve said this before, but I really do not feel like this would have happened without all of you. I mean this from the bottom of my heart (I’ll refrain from adding a joke here, for now). I have had a million different ideas and suggestions tossed my way, encouragement, understanding, and prayers. Every one got involved in one way or another. Last week when so many of you got involved – things came together. What an awesome feeling to know I have an army behind me in this quest to have heart surgery. You guys were fired up right a long side of us. Thank you. I’m seriously in awe of how this story has spread. Very humbling…..
I know the next question is: when is the surgery. I do not know exactly when I will be hearing from the scheduling department. A few more details need to come together insurance/scheduling wise. Also, my surgeon is having her colleague (another experienced cardiac surgeon) assist her. Working out a date that is available for both of them could be a challenge. (Hey, a new prayer request! 🙂 I also have to reapply to Medicaid Transportation and that is a process. The first time around I was denied for coverage to Minnesota. This part isn’t a necessity, but it sure would help.
Today’s Verse:

So let us come boldly to the throne of our gracious God. There we will receive his mercy, and we will find grace to help us when we need it most. Hebrews 4:16

Today’s Highlights:
• Dinner & Movie with McShane’s (sarah – despicable me!)
• X Games
• Oh, yeah – I heard a big fat YES today. 🙂
We’re headed to the mountain……

Just Say Yes

Well, the news is:

More details to follow, but I just wanted to get this word out asap….
Love you all and thanks to EVERYONE for every prayer, thought and effort you’ve given this! You guys helped make this happen….
(I typed up the following earlier….)
A little bit more of the Story….
Wednesday was rough. I had enough. I was so ready to be done with all of this – as in throw in the towel and walk away. I looked at the clock (as I was writing a completely different blog than what I posted on Wednesday) and I figured I wouldn’t be getting a call and resigned myself to not knowing anything yesterday. Literally, a minute later….the U of M called. They said that they were just a few steps away from knowing 100% yes. I asked what that meant. And she said that the physicians group had to make their decision. And I said, “you mean the hospital SAID YES?!” (crying laughing) She said yes. She really warned me and advised me to not spread the word just in case the physician group said no. I couldn’t allow myself the luxury of thinking it was a done deal. It wasn’t that I doubted – but I’ve been down this road many times in the past six weeks. I trust(ed) God regardless of the outcome, but knew I had to remain calm and unaffected. (Well, as much as possible anyway! *squeal!) I hated keeping it a secret for the past few days, but fear of it falling a part helped me to keep my mouth shut!

Joy Party

>So, I’ve heard from a few of you faithful followers……..that you check this here blog throughout the day for updates. (Which by the way – blows my mind to think that this is on the “hearts” and minds of so many!)

So, today while we’re waiting – I thought it would be fun for you to get here and have something to read. I am a big fan of all things JOY. I love the word, the meaning, what it brings, etc. I even have this word all over my room. (I even have the above design on my debit card.) I just love JOY. One of the foundational verses for getting me through paralysis when I was in high school was, “Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds…” (James 1:2) Through my twenties, I have loved “Be joyful always; pray continually; give thanks in all circumstances, for this is God’s will for you in Christ Jesus.” (1 Thes. 5:16-18) This verse happened to be in my inbox from KLOVE as the verse of the day today!

Anyway, I would LOVE to know what brings you JOY! For me – it’s little and big things. And even in the midst of all this crud going on, Jesus promises that there will always be JOY. Many days I have to really really look for something to be thankful for – let alone be JOYFUL about. But, it’s there. Even when I don’t see it.

Please share in the comments (or on FB) what brings you JOY today.

I LOVE YOU GUYS! You bring me sooooo much JOY!

Today Is.

>Thank you for all of the positive feedback from yesterday’s post! You guys ROCK. All of you are sustaining me (and the fam) through this stuff. It’s difficult to follow yesterday’s post, but today has been a rough one. Without going into loads of boring detail – today has been full of bummers and migraines. Just a whole lotta unanswered phone calls. At the very end of the day, I did talk to the U of M and they encouraged me that they are getting closer, but there’s still not a final answer yet. Pray it comes soon! The Lord is faithful.

Tomorrow WILL BE better. =)
Highlights of my Day:
• Snuggle time with Finley
• At least one more ski lesson w/ Aidan on Saturday.
• A netflix dvd came in the mail today. Exciting.
I’m going to go play Angry Birds & Words with Friends now – don’t tell my mom – she thinks I’m working…..

I sure hope these scores count for something when we get to heaven – otherwise, what a waste, right?! =)

Relentless Support

Hello! What a day, friends!

I have to start out this post by saying how much I appreciate, value and feel all of your support. I know that I have a team of people – friends, family, acquaintances – that are rallying on my behalf. I can’t begin to tell you how that feels or how much that means to me.
It boggles the mind to think that the day I found out about my heart surgery I wanted to keep the news under wraps. I didn’t want it to be made in to a BIG DEAL and I didn’t want it to CONSUME. I guess the Lord had a different plan, didn’t He?
This has been a journey. A journey – that while still in it – I’m not sure I would voluntarily do over. Every day – hour – minute has it’s ups and downs. Sometimes way up and sometimes waaaay down. The highlights of each day vary – but I can say that every day the support and encouragement of so many of you – near and far – never changes. Thank you from the bottom of my oversized, squished heart. =)
I don’t know what tomorrow will bring, but I’m hoping an answer. I talked to the U of M today and all of my paperwork is at the senior leadership. I really don’t know what that means – but that is hopefully a good thing since my case hasn’t been that far before. The lady that I talked to was VERY encouraging and reassuring that this was good news (and that they are taking their time in the decision.) This was the best conversation I have had thus far since beginning this process. I asked her to give me a call before she left the office – just to give my mind some peace for the evening. She was true to her word and I just got off of the phone with her. She said after I called her earlier she sent an email to senior leadership encouraging them to make a decision.
Also, plan B now has a doctor and hospital – though I’m not totally comfortable yet. I do not know anything about this surgeon (how much – if any – experience he has with Marfan’s, surgery plan, etc). Will continue to pursue this option IF the U of M says no.
I end today hopeful of tomorrow and reassured in God’s faithfulness and provision. He is good, sovereign and loving. Love you all. Thanks so much for ALL you are doing…
I found this poem in high school and had it printed on my graduation announcement – it’s even more true today:
I asked God for strength, that I might achieve;
I was made weak, that I might learn to humbly obey.
I asked for health, that I might do greater things;
I was given infirmity, that I might do better things.

I asked for riches, that I might be happy;
I was give poverty, that I might be wise.

I asked for power, that I might have the praise of men;
I was given weakness, that I might feel the need for God.

I asked for all things, that I might enjoy life;
I was given life, that I might enjoy all things.

I got nothing that I asked for, but everything I had hoped for.
Almost despite myself, my unspoken prayers were answered.

I am, among all, most richly blessed.